About Stephen Mack

Recently, Stephen Mack finished a 2-year term as President of the Joubert Syndrome Foundation and still serves on the Board as Immediate Past President. His most important role among all of this is as husband to Denise, and father to Isabella, Christian, and Abigail. When Isabella was born, she was diagnosed with a very rare condition called Joubert syndrome. From that moment forward, Dr. Mack has been dedicated to education, advocacy, mentoring, and support of research into rare diseases. Stephen is a proud NU alum (WCAS ’96 – GO CATS!) and has been regularly engaged in alumni events and support.

A Healthy Spirit

by Stephen Mack Over the past several months, I have finally resigned myself to undertake a most unenviable project – cleaning out my mother’s condo in preparation to list it for sale. It is a daunting task, to put it mildly. When my grandfather passed away long ago, I remember [...]

By |2016-12-03T11:16:07-05:00August 28th, 2016|Categories: 52 Traits, Be Faithful, Be Healthy|Tags: , , , , , , |

Generosity: A Perspective of Service

By Stephen H. Mack I love reading about acts of kindness, selflessness, and charity. Let’s face it – with the state of the world as it is some days, we need regular doses of joy and encouragement. To be sure, it is hard to always keep a positive attitude with [...]

By |2016-12-03T11:26:02-05:00July 14th, 2016|Categories: 52 Traits, Be Generous|Tags: , |

This journey we call fatherhood is extraordinary…

This journey we call fatherhood is extraordinary. In every way. From the birth of my first child, to the adoption of my second, to the arrival of my third, I am in awe of the little lives that have been entrusted to my care and my love. As much as I hope to teach them, they, by far, have taught me way more than I thought even possible. Through their adventures, I see the world in bright, new colors. Through their sleepy eyes, I am reminded, myself, to slow down. I relish in the pure bigness and unencumbered love they radiate towards me. How can I possibly hope to live up to their expectations of me? What can I possibly give to them that is more valuable, or at least of equal value, than the bursting joy they so freely share with me each day?

By |2017-03-02T19:55:34-05:00June 7th, 2016|Categories: 52 Traits, Be Empowered|Tags: , , , |